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Research

This study aims to describe the risk factors and trends in birth prevalence of septo-optic dysplasia (SOD) and gastroschisis between 1980 and 2023. This descriptive, population-based study of SOD and gastroschisis used Western Australian Register of Developmental Anomalies data from 1980 to 2023. Birth prevalence was calculated using Midwives Notification System data for all births after 20 weeks gestation.

Research

Globally, Indigenous peoples have incurred significant harm due to colonisation of their lands. Dispossession of culture, language, family and land, and the historical, systematic removal of children in Australia (the ‘Stolen Generation’), has resulted in evident ongoing negative outcomes in the contemporary lives of Aboriginal and Torres Strait Islander people.

News & Events

We have just launched the Telethon Kids Discovery Centre Schools Program for 2021. The program is FREE for Terms 1 and 2 and is a great opportunity for schools to pilot an educational science excursion at no cost.

News & Events

Meet Winter and Fox. The siblings are the first two participants in Australia to become involved in a new study using continuous glucose monitoring for measuring blood glucose levels in children at high risk of developing type 1 diabetes but who are not yet showing clinical signs of the condition.

News & Events

Have you had the chance to listen in on JDRF Australia’s T1D Tune In interview with Professor Liz Davis?

News & Events

Diabetes burnout is a state in which someone with diabetes grows tired of managing their condition, may ignore it for a period or become disengaged with diabetes management.

News & Events

Perth Children’s Hospital’s Diabetes Clinic has had a few queries about the new Dexcom G6 sensor, which recently became available in Australia.

News & Events

Swimming safety Remember that your pump should not be disconnected for more than two hours at a time — if you disconnect your pump for swimming,

News & Events

Love them or hate them, but sleepovers are a popular pastime for children. Understandably, parents of children living with type 1 diabetes might be hesitant to leave them in someone else’s care for an extended period, but there are ways to ensure that everyone is prepared for a safe experience.

News & Events

Our head of epidemiology research Dr Aveni Haynes and exercise researcher Dr Wayne Soon were lucky enough to be invited to Perth Children’s Hospital School to discuss type 1 diabetes and the research we are doing here at the Children’s Diabetes Centre.

News & Events

We will be hosting a CONNECT cuppa catch up with the Diabetes Team on Wednesday, March 10, 2021. The event provides an opportunity to hear about the Centre’s research as well as chat to our researchers about their work.

News & Events

Anthony and Zavier's mum Lucy talks about her contrasting school experiences in dealing with her sons' type 1 diabetes - with and without the support of the Diabetes in Schools program.

Research

Aim: To: (1) develop a core outcome set (COS) to assess chronic pain interference and impact on emotional functioning for children and young people with cerebral palsy (CP) with varying communication, cognitive, and functional abilities; (2) categorize the assessment tools according to reporting method or observer-reported outcome measures; and (3) categorize the content of tools in the COS according to the International Classification of Functioning, Disability and Health (ICF).

Research

Ensuring that Aboriginal and Torres Strait Islander children removed from their families by child protection services remain connected to their kin, Country and culture is a priority to begin to redress the intergenerational trauma and harm caused by colonisation. This article describes the views of staff working in three mainstream out-of-home care organisations, where children are cared for by non-Indigenous foster carers.

Research

Siblings of children with neurodevelopmental conditions have unique experiences and challenges related to their sibling role. Some develop mental health concerns as measured by self-reported surveys or parent report. Few data are available at the population level, owing to difficulties capturing wide-scale health data for siblings. Data linkage is a technique that can facilitate such research. 

Research

Body position and movement during sleep is assessed for both clinical and research purposes. A diverse array of both assessment tools and classification systems are used to capture and code sleep biomechanics data.

Research

Rett syndrome (RTT) is a severe neurodevelopmental disorder affecting predominantly females and associated with variants in the MECP2 gene. Recent success in clinical trials have resulted in an expanded use of the Rett Syndrome Behaviour Questionnaire (RSBQ) for clinical and research purposes.

Research

Helen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763

The Sibling Project focuses on children, adolescents and emerging adults who have a sibling with a disability, investigating their mental health, relationships and quality of life.

National Siblings Day is a holiday dedicated to celebrating the bond between siblings. It is a time to recognize the importance of siblings, whether they are brothers, sisters, step-siblings, or even those who feel like family.