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Autism Research

The Kids' autism research takes place at CliniKids, a centre that integrates world-class research with a clinical service for children with developmental delay and/or autism and their families.

One of the unique aspects of CliniKids is the integration of clinical services with autism research.

Led by Professor Andrew Whitehouse, autism researchers work in collaboration with clinicians to give families faster access to world-leading therapies that are neurodiversity-affirming, backed by research, and tailored to families’ individual needs.

Our researchers are interested in understanding children with developmental conditions from the early stages of life to find new ways of assisting them to reach their full potential.

CliniKids researchers also provide evidence-based advice to Government to support policy change for better outcomes for autistic individuals and their families.

The team comprises more than 60 researchers and clinicians from a variety of backgrounds (psychology, speech pathology, occupational therapy, education, nursing, neuroscience).

Researchers are funded through grants from the NHMRC, ARC, NIH and other competitive research funding bodies. The team collaborates with more than 200 researchers from around the world, and is a prominent partner within the Autism Cooperative Research Centre.

The team is also committed to the translation of scientific knowledge, as demonstrated through our work in scientific communication ('60 Second Science' video series, viewed more than 2 million times), and our leadership on national policy (researchers led the development of Australia’s first guidelines for autism diagnosis and support for autistic children and their families).

The CliniKids team is focused on conducting research on:

  • Improving lives by discovering acceptable, feasible and effective/efficacious methods for reducing challenges associated with autism.
  • Connecting research outcomes to policy by working with the State and Federal Governments to develop evidence-based policy for autistic individuals.
  • Developing research infrastructure by creating a research base that can be connected to international research efforts.
  • Building a community and developing ways for the autism community to connect in a positive and beneficial way.

Team highlights

  • The completion and publication of the first Australian clinical guideline for supporting autistic children and their families, which was endorsed by the NHMRC council in February 2023.
  • The completion and publication of the first Australian clinical guideline for ASD assessment diagnosis, which was endorsed by the NHMRC council in July 2018.
  • Completion of the Australian Autism Biobank, Australia’s largest repository of biological information collected form children with ASD and their families (>5000 biospecimens).
  • Publication of more than 20 peer-reviewed papers;/year, including many in high-ranging journals (e.g., Pediatrics, Journal of Child Psychology and Psychiatry, Nature Communications).

Team leader

Deputy Director (Research); Angela Wright Bennett Professor of Autism Research at The Kids Research Institute Australia; Director, CliniKids

Aarti Saiganesh
Aarti Saiganesh

BSc (Hons), PhD

Senior Program Manager, CliniKids

Team members (19)

David Trembath
David Trembath

BaAppSc, MAppSc, PhD

Head of Autism Research; Senior Principal Research Fellow

Dr Kandice Varcin
Dr Kandice Varcin

M.Psych (Clinical), PhD

Senior Research Fellow

Jess Reynolds
Jess Reynolds

BSc(Hons), BScTech, PhD W.Aust. SpecCertCR(Neuro) Melb.

Program Manager, Autism Research

Speech Pathologist

Senior Research Fellow

Lucy Donovan
Lucy Donovan

Bachelor of Human Communication Science (Honours)

Speech Pathologist

Maretta Mann
Maretta Mann

BSc(Hons), PhD, GradCertTMLP

Research Development Manager, CliniKids

Alena Clark

Alena Clark

Project Manager

Celine Bollinger

Celine Bollinger

Senior Administration Officer

Jack Brett

Jack Brett

Research Fellow

Noor Chehayber

Noor Chehayber

Project Administration Officer

Debbie Eamer

Debbie Eamer

Project Officer

Georgina Earl

Georgina Earl

Clinical Research Assessor

Bec Hanley

Bec Hanley

Communications Officer

Kathi Roiger

Kathi Roiger

Clinical Research Assessor

Rebecca Kuzminiski

Rebecca Kuzminiski

Project Coordinator

Autism research videos

Reports and Findings

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Child and Family Characteristics as Predictors of the Severity of Self-injurious Behaviours in Autistic Children and Adolescents

Autistic children demonstrate an increased likelihood of self-injurious behaviours (SIB). To support autistic individuals who exhibit SIB and understand the factors that contribute to SIB, we examined several child and family characteristics associated with the severity of SIB.

Development and initial validation of the Communication Inventory Disability – Observer Reported (CID-OR): a measure of communication in CDKL5 deficiency disorder

CDKL5 Deficiency Disorder (CDD) is a rare neurodevelopmental disorder characterised by early onset seizures combined with complex healthcare needs and developmental impairment that influence functional domains including communication. Communication is a high priority domain for families but currently used measures demonstrate floor effects. 

Evaluating placebo responses to intranasal oxytocin in autism: findings from the placebo lead-in phase of a randomised controlled trial

The placebo effect is established in clinical trials, but for paediatric research, questions remain about how to best manage its influence. Within the autism field, data on these issues is sparse. This is particularly important in the oxytocin field where placebo responses are thought to play an important role. This study reports on data from the single-blind, placebo lead-in phase of a randomised controlled trial to investigate the placebo response and its relationship to treatment response in autistic children. 

The impact of child self-regulation difficulties on parents: A qualitative study

The capacity for children to self-regulate is an important developmental task of early childhood, with caregivers playing an integral role in self-regulation development. While caregivers' emotions and behaviors are known to impact child self-regulatory capacity, the impact of child self-regulation difficulties on parents is less understood. 

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